For a short time I had a career working with persons who have disabilities.But,in the end,that line of work seemed ill suited to me,and just as likely me for it.Because of differences in ideology with the powers that be,I eventually decided to follow a different career path.For my part,I,having recently left school with a head full of ideals ran full speed ahead into administrators who seemed concerned only with the practical aspects of getting the job done and had very little time for ideals.I found them stodgy and conservative,and,in all likelihood they may well have viewed me as liberal and perhaps too progressive.
When it comes to being labeled liberal,I'll say right off,I make no apologies for my politics,which has as it's cornerstones egalitarianism and social justice.I've always believed,and still do that what I needed to be doing was moving the cause of disabled persons forward,not participating in a system that tries to maintain an often questionable status quo.So,let me just say,as far as disability issues are concerned,they are a big issue for friends that I admire,respect and love.Therefor,I have not fallen off the edge of the earth,but remain interested,informed and engaged.In the coming months,expect to see a number of op/ed entries on these issues on this blog.
To that end,I want to start out by asking a number of questions about a hypothetical situation involving a wide range of hypothetical people.You should not view this situation as real,nor is it the only situation that could be presented involving my questions.The questions,broadly stated involve what sort of information,how much of it,and to whom it should be made available under what circumstances.Let me illustrate by presentin a brief case study,again,hypothetical.What I want you to focus on is largely a question of who has a responsibility to whom,in terms of quality control.
Case Study-Tom has been caring for his aged father,who has had dementia for over a decade.Tom is also a career caregiver,working in a residential setting for an agency,one of two that provide such services in the small city where he lives.
Tom's father also has other children,who are concerned about his well being.However,they live in distance cities.For a number of years,all goes well.But more recently Tom's siblings have come to have an increasing level of concern for the level of care being provided to their father.While at one time Tom was freely speaking to concerns raised by his siblings,more recently he has been withholding information,and not answering directly posed questions.In response to reasonable questions,he often seems defensive and on one occasion,belligerent.A request by one of his siblings to see documentation,appropriate to the care giving trades is met with absolute refusal.Now,eventually Tom's father passes away,not unexpectedly given his poor health.Still,Tom has not assured his siblings that quality of care has been delivered,and since his father is deceased,it is no longer an issue for state agencies to deal with.The issue remains unresolved for a number of months,and in fact is still ongoing.
Now,my concern in this hypothetical mess is,who should be saying what,and to whom.I have my own ideas about this situation,but for the moment I'll let the questions remain rhetorical and save the opinion for another time.
Here are the questions:1.Does the agency for which Tom works have a vested interest in seeing a resolution to this ongoing problem?
2.Do Tom's siblings have a right to use Tom's employer as a court of public opinion in resolving their concerns?Can that right,in fact be stated as a responsibility,and,if so to whom?
3.How should the public view an agency,once informed that they have an employee who refuses to provide documentation of care in a situation not directly related to their job,that does not take issue with that employee?
4.Do consumers of care deserve to know about this situation in the interests of informed consent?If so,who should be providing the buyer beware information to them?Is informed consent violated if they do not know?
As I say,these are just some of the questions that come to mind.While I have some opinions on this matter,for the moment I will defer stating those opinions.For the moment,I simply ask readers to consider the questions,be aware that they are being asked,and ask some questions of their own in regards to these issues.Because,at some point these issues may well visit you where you live.
When it comes to being labeled liberal,I'll say right off,I make no apologies for my politics,which has as it's cornerstones egalitarianism and social justice.I've always believed,and still do that what I needed to be doing was moving the cause of disabled persons forward,not participating in a system that tries to maintain an often questionable status quo.So,let me just say,as far as disability issues are concerned,they are a big issue for friends that I admire,respect and love.Therefor,I have not fallen off the edge of the earth,but remain interested,informed and engaged.In the coming months,expect to see a number of op/ed entries on these issues on this blog.
To that end,I want to start out by asking a number of questions about a hypothetical situation involving a wide range of hypothetical people.You should not view this situation as real,nor is it the only situation that could be presented involving my questions.The questions,broadly stated involve what sort of information,how much of it,and to whom it should be made available under what circumstances.Let me illustrate by presentin a brief case study,again,hypothetical.What I want you to focus on is largely a question of who has a responsibility to whom,in terms of quality control.
Case Study-Tom has been caring for his aged father,who has had dementia for over a decade.Tom is also a career caregiver,working in a residential setting for an agency,one of two that provide such services in the small city where he lives.
Tom's father also has other children,who are concerned about his well being.However,they live in distance cities.For a number of years,all goes well.But more recently Tom's siblings have come to have an increasing level of concern for the level of care being provided to their father.While at one time Tom was freely speaking to concerns raised by his siblings,more recently he has been withholding information,and not answering directly posed questions.In response to reasonable questions,he often seems defensive and on one occasion,belligerent.A request by one of his siblings to see documentation,appropriate to the care giving trades is met with absolute refusal.Now,eventually Tom's father passes away,not unexpectedly given his poor health.Still,Tom has not assured his siblings that quality of care has been delivered,and since his father is deceased,it is no longer an issue for state agencies to deal with.The issue remains unresolved for a number of months,and in fact is still ongoing.
Now,my concern in this hypothetical mess is,who should be saying what,and to whom.I have my own ideas about this situation,but for the moment I'll let the questions remain rhetorical and save the opinion for another time.
Here are the questions:1.Does the agency for which Tom works have a vested interest in seeing a resolution to this ongoing problem?
2.Do Tom's siblings have a right to use Tom's employer as a court of public opinion in resolving their concerns?Can that right,in fact be stated as a responsibility,and,if so to whom?
3.How should the public view an agency,once informed that they have an employee who refuses to provide documentation of care in a situation not directly related to their job,that does not take issue with that employee?
4.Do consumers of care deserve to know about this situation in the interests of informed consent?If so,who should be providing the buyer beware information to them?Is informed consent violated if they do not know?
As I say,these are just some of the questions that come to mind.While I have some opinions on this matter,for the moment I will defer stating those opinions.For the moment,I simply ask readers to consider the questions,be aware that they are being asked,and ask some questions of their own in regards to these issues.Because,at some point these issues may well visit you where you live.
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